Charity Information:
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The May 2010 Charity is the Noah's Ark Trust Futher detail can be found on the website or by ringing; 01905 340019 www.noahsarktrust.co.uk |
Motor Neurone Disease
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We Alway's Said; "It's All About The Charity" |
Everyone who comes to The Abbey Soul Nights knows us all, Rob, Helen, Don, Lizzie, Steve, Vanessa, John and Gilli. We all love Soul music, love to dance and we enjoy every bit of the evening just as much as you do, it's great fun, great music and a great party atmosphere! But of course the best thing is that we are raising funds for such a good cause! So why Motor Neurone Disease? Unless you are touched by the disease, most people have no idea what MND is or its implications. Pam Goodall (my Mum) was diagnosed with MND in April 2003 after numerous investigations, months of doctors appointments, confusion and uncertainty, a consultant finally realised that all her different symptoms pointed towards the disease. Within six months Mum was totally dependant on others for everything, she could not swallow so was fed fortified liquid food through a tube in her stomach known as a PEG, she lost weight rapidly and suffered pain in her joints and endured pressure sores on all contact points of her body due to muscle loss. She had to use a commode to go to the toilet, this was a feat in itself it took at least two people to lift her on and off the commode and the hardness of the seat was agony for her as she had hardly any flesh left on her bottom!
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To give Mum as much comfort as was possible the MND Association provided her with all the support and care that they could, including giving Mum a special chair for her to sit in that would lift her up or down and also a 'gel seat', a special cushion for the commode, I'll never forget my Mum's face the first time she sat on it, she smiled, going to the toilet was no longer such a painful experience for her! The MND Association were the first people we contacted when Mum was diagnosed, they guided us through the minefield of sorting out care, including Speech Therapists, Occupational Therapists and Physio Therapists and were always there at the end of a phone to answer any questions or to pop in to see the family when we needed advice. To date scientists still do not know what causes MND and there is no cure. Thanks to your support and by Nov 2005, we had raised over £6675.50 and by May 2008 just over £14,000 for MND. The local Worcestershire branch of MND benefit from all of this and I know they are delighted as they are constantly being approached for help to support new cases of people diagnosed with MND. |
Sadly Mum died on May 4th 2004, she fought the disease with great dignity and courage. She would be so pleased to know the efforts that everyone makes to raise funds, to try to find a cure, to stop the suffering. Thank You Helen |